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Weocome
to the web-side of the National Association
Gaucher Disease here uoy can find some infomation , opinions ,
advice which were part of the worl gaucher disease persons and their
familys . Association has the purpose to unite , support all the pepole
and bulgarian families faced with the problem of gaucher disease . We
learn one from another , listen atentiveily to the specialits'advice ,
keep contacts with similar organisations around . NAGD
is non - political , syndicale , religion or buisness organisation .
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National
Association Of Gaucher Disease
is a non-govermental organisation legal entily with not economic
purpose . It's is protection and adaptation , as to cooperate for the
respect of the human rights of this rarely found Gaucher Disease .
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Gaucher
disease
is an inherited metabolic disorder in which harmful quantities of a
fatty substance called glucocerebroside
accumulate in the spleen, liver, lungs, bone marrow, and sometimes in
the brain. There are three types of Gaucher disease.
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The
activity
of the National Association Gaucher Disease persons is directed to
protect and support the Gaucher disease persons ( this rare but
insidious disease ) !Establishing the international contacts and not on
the second place rasing found from volunteer donations sponsors and
projects and others !The funds with which the association will fall
short of its aim ( fail its purpose ) .
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BANK
ACOUNT - ¹ 1010272414
BANK CODE - 20084232
OBB - St. " Maria Luiza"
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